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Patient and Family Advisory Council

Co-design Lab

PULSE only says things that patients and families have helped shape. Review a real-world scenario and tell us how PULSE should respond.

Developer note: In the prototype, feedback is held in the browser for this session only. In the research build it is stored against a versioned response variant for analysis.

Worsening fatigue during chemotherapy

SUPPORT

Colorectal cancer · Chemotherapy · 5 months since diagnosis

A person currently receiving chemotherapy reports that fatigue has increased from 3/10 to 7/10 over three weeks. Physical activity has decreased from 140 to 45 minutes per week, and sleep quality has worsened from 7/10 to 4/10. They report anxiety of 5/10 and no other concerning symptoms. There are no urgent safety flags.

Fatigue
3 → 5 → 7
Sleep quality
7 → 5 → 4
Physical activity
140 → 90 → 45 min/week
Anxiety
5
Safety flags
None urgent

How should PULSE respond?

Choose the response you would want to receive.

Rate the response you chose

1 = not at all, 5 = completely

  • Helpful
  • Clear
  • Respectful
  • Trustworthy
  • Actionable
  • Appropriate amount of information
  • Appropriate tone
  • Personalized
  • Reassuring without minimizing symptoms

In your own words

When something changes, PULSE should first…